Living with a brain tumour presents unique challenges. Here are some valuable suggestions for patients:

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• Take control of your situation by educating yourself thoroughly about your tumour and explore all available treatment options and be informed about each one.  Consider your preferences and desired outcomes when evaluating treatment possibilities. Take the opportunity to explore various resources and experiences, such as seeking advice from individuals who have undergone surgery in different locations.
   

• Seek multiple consultations, (minimum of 3)  from healthcare professionals to ensure a comprehensive understanding of your situation. Remember that ultimately, you are the one who makes decisions about your health, and you must live with the consequences
   

• Enquire about clinical trials and be proactive in discussing potential participation with your healthcare team.
   

• Investigate the potential benefits of specific diets, such as the Ketogenic diet, which is sometimes used for brain cancer and epilepsy. The Ketogenic diet is often praised for its potential benefits, but its effectiveness can vary greatly from person to person.
   

• Keep in mind that the effectiveness of certain approaches may vary from person to person, and consider consulting reputable sources for additional information. Seek guidance and support from organisations like the Hillingdon Brain Tumour & Injury Charity and other relevant charities.
   

• Maintain a diary to track your symptoms and overall well-being, Prioritise rest and recharge by taking short naps when needed. Don't hesitate to ask for assistance and support from friends, family, and healthcare providers.
   

• Foster a positive mindset by engaging in conversations with others and maintaining belief in your own resilience and understanding of your body.